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The Foundation continues to evolve our venture philanthropy approach to take advantage of emerging science with the potential to benefit individuals with CF who are most in need of new therapeutic options. ET, 5 p.m. PT. `` We 're excited to work with the Cystic Fibrosis Foundation , the world 's leader in supporting breakthrough technologies for cystic fibrosis , '' said Geoffrey von Maltzahn , Ph.D , Co-Founder and CEO of Tessera Therapeutics , and General Partner at Flagship Pioneering . Cystic Fibrosis Foundation Jun 2019 - Mar 2022 2 years 10 months. With the steadfast support of the CF community and unprecedented momentum in research powered by our venture philanthropy model, we have more hope for the future than ever before. Join us and you will join an amazing team, devoted to our community, and our mission. We strive to recruit and maintain a diverse workforce. Get email updates for new Investment Intern jobs in Bethesda, MD. In 2019, the approval of elexacaftor/tezacaftor/ivacaftor (Trikafta), a highly effective modulator therapy treating the underlying cause of disease for more people than ever before, marked a monumental shift in the development of treatments for CF. The foundation turned this steady flow into a waterfall: It sold its royalties in Kalydeco and other future Vertex cystic fibrosis products in 2014 to Royalty Pharma (Nasdaq: RPRX) for $3.3. Find out more about how you canapply for the programme. Minimum of 3 years of investments work-related experience. SalioGens Gene Coding approach seeks to insert a large piece of healthy CFTR DNA at a precise location within the CFTR gene, which could enable the expression of a functional CFTR protein in essentially all individuals with CF, regardless of their individual mutation.. The Foundation funds more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. Headquarters Location 4550 Montgomery Ave. Suite 1100 N Bethesda, Maryland, 20814, United States 301-951-4422 Suggest an edit Find out about our funding process and governance. PitchBooks data visualizations help you see a limited partners commitmentsshowing a breakdown of activity by fund type and region, complete with performance metrics. Chief Investment Officer Cystic Fibrosis Foundation Aug 2016 - Present6 years 7 months Washington D.C. Metro Area First internal CIO at $3.8 billion foundation working closely with. Sourcing new opportunities and investment partners across the globe and all asset classes (public markets, private markets, and opportunistic). Innovate with courage: We embrace challenges. By creating this job alert, you agree to the LinkedIn User Agreement and Privacy Policy. 4/18/2022 Are you sure you wouldnt like a free professional resume evaluation? Fundamentals of asset allocation and portfolio management. This rating has decreased by -8% over the last 12 months. When the Cystic Fibrosis Foundation started giving money to a small biotech firm back in 2000, its moonshot of a best-case scenario was that the company would discover a new treatment for the . The Cystic Fibrosis Foundation is the world's leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles. Not all information can be electronically communicated. Gene therapy involves inserting a new version of the CFTR DNA into the cells of people with cystic fibrosis. Cystic Fibrosis Foundation has made 53 investments. With the support of our Board of Trustees, Dr. Beall began working the phones to find a willing partner. The Cystic Fibrosis Foundation has committed $20 million to support the development of innovative therapeutics and early-stage companies focusing on cystic fibrosis (CF). Visit the Career Advice Hub to see tips on interviewing and resume writing. Not finding your dream job? Experience with Microsoft Word, Excel, and PowerPoint. The CF Foundation's established venture philanthropy model provides early-stage funding to companies to develop breakthrough treatments for adults and children with cystic fibrosis. If you are a member of a news or media organization and need assistance, please contact the CF Foundations media team at mediarelations@cff.org. Introduction to multiple investment asset classes. Interviews at Cystic Fibrosis Foundation Experience Positive 64% Negative 26% Neutral 10% Getting an Interview Applied online 81% Campus Recruiting 8% Recruiter 3% Difficulty 2.6 Average Hard Average Easy Interviews for Top Jobs at Cystic Fibrosis Foundation Development Director (3) Development Manager (3) Event Support Specialist (3) Intern (2) The Cystic Fibrosis Foundation (CF Foundation) and its employees embrace their commitment to its core values. The Foundation continues to evolve our venture philanthropy approach to take advantage of emerging science with the potential to benefit individuals with CF who are most in need of new therapeuticoptions. People with CF are living longer, healthier lives than ever before. The Cystic Fibrosis Foundation is the world's leader in the search for a cure for people with cystic fibrosis, a rare, genetic disease that progressively limits the ability to breathe, causing debilitating lung infections, and ultimately, premature death. Bethesda, MD 20814, Local: 301-951-4422Toll free: 800-FIGHT-CF (800-344-4823), Email: info@cff.org (see the Chapter Directory for local e-mail addresses). We are a nonprofit, donor-supported organization that has raised and invested billions of dollars to help develop cystic fibrosis therapies that have changed the lives of people with this disease. We chose to work with Aurora because the company specialized in high through-put screening, a unique technology that used robots to test the therapeutic properties of thousands of chemical compounds a day in cells in laboratory dishes. In 2000, the Foundation made its first large investment: $40 million with Aurora Biosciences (now Vertex Pharmaceuticals) to discover compounds that might correct the core genetic defect in people with CF. In 1989, a team of scientists supported by the Foundation discovered the cystic fibrosis gene and opened the door to our understanding of the disease at its most basic level. The assets of the foundation are managed by the board of trustees. Aspire for excellence in all we do: We take pride in our work. EIN: 13-1930701. (415) 353-2961. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality . The Intern assists in implementing operational best practices to support the total investment program, executing the investment strategy, and researching new investment opportunities. This is a profile preview from the PitchBook Platform. Learn how you can contact the Cystic Fibrosis Foundation. BETHESDA, Md. A person will be born with CF only if 2 CF genes are inheritedone . The Associate participates in formulating the investment strategy, underwriting, and investing into new opportunities, and managing the total investment portfolio. Get email updates for new Investment Associate jobs in Bethesda, MD. POSITION SUMMARY: Funding calls from other funders of CF research Full of useful reminders of grant deadlines, conferences and workshops, this is your go-to page for important information to progress your research. Unable to update subscription. Today, we invest more than $225 million per year in CF research and care. Your job seeking activity is only visible to you. We promote an environment that attracts -- and retains -- a diverse group of talented people who are passionate about eradicating this disease . --The Cystic Fibrosis Foundation announced today that it has invested in SalioGen Therapeutics to support the companys preclinical research into a novel genetic therapy for cystic fibrosis. Find out more aboutapplying for this stream of funding. 301-951-4422. . As a result, the organization has a pipeline of drugs in various phases of development and reinvests the funds from any royalties it owns to advance drug discovery and efforts to find a cure. Win whats next. SalioGens Gene Coding, controlled manner to maintain the normal, regulated expression of genes such as cystic fibrosis transmembrane conductance regulator (CFTR). The Cystic Fibrosis Foundation is the world's leader in the search for a cure. By 1998, the median predicted age of survival for a person with CF was 32 years, and people with CF and their loved ones were desperate for faster progress. Deadline: Scholarship applications are being accepted through January 3, 2018, at 11:59 p.m. PST, and recipients will be notified in May 2018. site you are consenting to these choices. Drop your resume here to join our talent network. Join to apply for the Investments Associate role at Cystic Fibrosis Foundation. Bethesda, MD 20814, Journal of CF Highlights Cost Burden Prevalent in the Cystic Fibrosis Community, CF Foundation Applauds Reintroduction of the HELP Copays Act, CF Foundation Formalizes Recommendations to Address Health Inequities, CF Foundation Reflects on Progress Toward Equity, Racial Justice, Diversity, and Inclusion, CF Foundation Invests Up to $15M in ReCode Therapeutics for Development of mRNA Therapy, CF Foundation Invests Up to $3.5M in Gensaic for Novel Gene Delivery Method, CF Foundation Urges Vertex Pharmaceuticals to Reverse Consequential Decision on Copay Assistance, Newly Expanded Cystic Fibrosis Foundation Lab Will Enable More Research Into Genetic Therapies, What I Didnt Expect About Transitioning From Pediatric to Adult CF Care, Adapting to Life as a Parent of a Child With CF, Having Tough Conversations With My Kids About My CF, It Turns Out I Wasnt Clumsy, I Have Vestibular Loss, How Family Relationships Have Grown Along With Day-to-Day Life. Improving the investment process, including work on investment operations, performance management and risk management. Number of For-Profit Companies 39. Tessera Therapeutics Announces R&D Collaboration with Cystic Fibrosis Foundation as Part of a Portfolio of Complementary Technologies Advanced by Flagships Pioneering Medicines to Treat Cystic Fibrosis. Able to consider future scenarios, opportunities and risks by thoroughly evaluating variables, and assessing impact on the investment portfolio. SalioGens Gene Coding approach aims to modify an individuals DNA in a highly controlled manner to maintain the normal, regulated expression of genes such as cystic fibrosis transmembrane conductance regulator (CFTR). Venture philanthropy, where a nonprofit organization provides funding to a for-profit company to de-risk an investment, was an entirely new approach to funding research. The Gene Coding machinery utilizes a proprietary mammalian enzyme that is designed to allow the integration of DNA sequences without causing double-strand DNA breaks and potential unwanted DNA damage. For decades, we have been taking major steps and pioneering new ways to find a cure for cystic fibrosis. The Cystic Fibrosis Foundation, a 501 (c) (3) nonprofit organization, has unrestricted financial reserves of about 14 times its 2022 operating budget. The Cystic Fibrosis Foundation is a leading healthcare nonprofit organization like no other. . The approach has been widely emulated by many other rare disease nonprofits, and a National Institutes of Health initiative has adopted CF Foundation strategies to advance drug development for rare and neglected diseases. According to the Cystic Fibrosis Foundation, more than 30,000 people in the United States and more than 70,000 people worldwide are living with cystic fibrosis, and approximately 1,000 new cases of cystic fibrosis are diagnosed in the United States each year. Total Rewards: The CF Foundation is committed to offering competitive compensation (base pay and incentive), benefits, and professional development opportunities that maximize our ability to recruit, retain, reward, and motivate a highly-qualified and diverse workforce. Select A Team: About CFF Cares; Find an Event . CB Rank (Hub) 50,874. The Foundations investment in SalioGen is part of our $500 million Path to a Cure initiative, an ambitious research agenda to deliver treatments for the underlying cause of the disease and a cure for every person with CF. Standard office environment. In collaboration with venture capital firm Longwood Fund, the funding is part of the foundation's Path to a Cure, a $500 million initiative launched in October to promote . "And I have some concern about the possible appearance of a conflict.". Get the latest nonprofit news, funding opportunities, job openings, and more delivered to your inbox with Philanthropy News Digest newsletters. Since many of our patients were diagnosed with cystic fibrosis as children or teenagers, we . We support one another. Youre viewing 5 of 22 team members. In the years that followed, our venture philanthropy model later supported the development of additional therapies, lumacaftor/ivacaftor (Orkambi) and tezacaftor/ivacaftor (Symdeko), that benefited more people with CF, including those with the most common mutations. The proceeds of the sale will dramatically accelerate and expand the foundations research, care, and patient programs and significantly boost its funding of research targeting the genetic cause of CF. For medical advice, talk to your CF care team or other health care provider to answer any questions you may have. Nearly every CF medicine available today was made possible because of Foundation support. Referrals increase your chances of interviewing at Cystic Fibrosis Foundation by 2x. The Foundation continues to evolve its venture philanthropy approach to take advantage of emerging science with the potential to benefit individuals with CF who are most in need of new therapeutic options. Travel to conferences and meetings, as necessary. The CF Foundation is an equal opportunity employer that is committed to being an employer of choice, not just a good place to work, but a great and inclusive place to work. We are committed to continuous learning and improvement. These core values are the pillars on which the CF Foundation stand and will continue to sustain us as we move forward. We listen with respect. What: Vertex will award numerous scholarships of $5,000 each to members of the CF community. We pioneered venture philanthropy and led the movement of voluntary health organizations funding drug development with for-profit companies.